Main Article Content

Abstract

This study aims to explore the experience of mothers whose children suffered from Acute Lymphoblastic Leukemia (ALL). Mothers of child with chronic diseases, such as ALL, have to manage their roles as a caregiver for their sick child, while also managing domestic responsibilities. Using phenomenological approach, the interviews and observations were conducted to two mothers whose at least one of their children were diagnosed with LLA when they were 7 and 9 years old. Data collections were conducted in two sessions. Six themes were emerged by the participants:1) overcoming a turning point of their lives, 2) the learning process, 3) receiving support, 4) connecting with God and people in similar situation, 5) no mother is perfect, and 6) one thing at a time. The result of this study can inform wider community, as well as relevant professional workers, to better understand the psychological dynamics of the mothers or caregivers and to assist in designing mental health support programs for the caregivers of children with chronic diseases.

Keywords

caregiver children with leukemia mothers mother's role leukemia phenomenology anak dengan leukemia fenomenologi ibu leukemia pengasuh peran ibu

Article Details

How to Cite
Panjaitan, A. H., & Mansoer, W. W. (2020). Exploration of the meaning making experience of mothers whose children suffered from acute lymphoblastic leukemia. Jurnal Psikologi Ulayat: Indonesian Journal of Indigenous Psychology, 7(2), 244–263. https://doi.org/10.24854/jpu140

References

  1. Bally, J. M. G., Duggleby, W., Holtslander, L., Mpofu, C., Spurr, S., Thomas, R., & Wright, K. (2014). Keeping hope possible. Cancer Nursing, 37(5), 363-372. doi: 10.1097/ncc.0b013e3182a453aa
  2. Behrman, R. E., Kliegman, R. M., Arvin, A. M. (2000). Ilmu kesehatan anak nelson (15th ed., Vol. 3). Jakarta: Penerbit Buku Kedokteran EGC.
  3. Bozo, Ö., Anahar, S., Ate?, G., & Etel, E. (2009). Effects of illness representation, perceived quality of information provided by the health-care professional, and perceived social support on depressive symptoms of the caregivers of children with leukemia. Journal of Clinical Psychology In Medical Settings, 17(1), 23-30. doi: 10.1007/s10880-009-9177-4
  4. Cicogna, E., Nascimento, L., & Lima, R. (2010). Children and adolescents with cancer: Experiences with chemotherapy. Revista Latino-Americana De Enfermagem, 18(5), 864-872. doi: 10.1590/s0104-11692010000500005
  5. Coniglio, S., & Blackman, J. (1995). Developmental outcome of childhood leukemia. Topics In Early Childhood Special Education, 15(1), 19-31. doi: 10.1177/027112149501500104
  6. Cooper, S., & Brown, P. (2015). Treatment of pediatric acute lymphoblastic leukemia. Pediatric Clinics of North America, 62(1), 61-73. doi: 10.1016/j.pcl.2014.09.006
  7. Davis, A., Viera, A., & Mead, M. (2014). Leukemia: An overview for primary care. American Family Physician, 89(9), 731-738.
  8. Fianza, P. I. (2006). Leukemia limfoblastik akut. Dalam Sudoyo, A. W., Setiyohadi, B., Alwi, I., Simadibrata, M., & Setiadi, S. (4th ed.). Buku ajar ilmu penyakit dalam (hlm. 1266-1275). Jakarta: Interna Publishing.
  9. Florian, V., & Krulik, T. (1991). Loneliness and social support of mothers of chronically ill children. Social Science & Medicine, 32(11), 1291-1296. doi: 10.1016/0277-9536(91)90045-e
  10. Guba, E. G. (1981). Criteria for assessing the trustworthiness of naturalistic inquiries. Educational Communication and Technology, 29(2), 75-91. doi: 10.1007/BF02766777
  11. Himawan, K. K., Bambling, M., & Edirippulige, S. (2017). Modernization and singlehood in Indonesia: Psychological and social impacts. Kasetsart Journal of Social Sciences. 1-8. doi: 10.1016/j.kjss.2017.09.008
  12. Hussain, A., Ahmad, N., Manzoor, R., & Hameed, M. (2015). Impact of modernization on gender roles: A study of advocates in muzaffar garh. International Letters Of Social and Humanistic Sciences, 52, 15-22. doi: 10.18052/www.scipress.com/ilshs.52.15
  13. Katooa, N., Shahwan, L. J., Reece, & Jones, L. (2015). Characteristics of mothers with chronically ill children in jeddah, saudi arabia. International Journal of Nursing, 2(1), 59-73. doi: 10.15640/ijn.v2n1a7
  14. Kurnianda, J. (2006). Leukemia mieloblastik akut. Dalam Sudoyo, A. W., Setiyohadi, B., Alwi, I., Simadibrata, M., & Setiadi, S. (4th ed.). Buku ajar ilmu penyakit dalam (pp. 706-709) Jakarta: Interna Publishing.
  15. Lubkin, I. M., & Larsen, P. D. (2013). Chronic illness (9th ed.). Burlington, NJ: Jones & Bartlett Learning.
  16. Macedo, E., Silva, L., Paiva, M., & Ramos, M. (2015). Burden and quality of life of mothers of children and adolescents with chronic illnesses: An integrative review. Revista Latino Americana De Enfermagem, 23(4), 769-777. doi: 10.1590/0104-1169.0196.2613
  17. Major, D. (2003). Utilizing role theory to help employed parents cope with children's chronic illness. Health Education Research, 18(1), 45-57. doi: 10.1093/her/18.1.45
  18. Maria, A., Indriati, G., & Rahmalia, S. (2014). Pengalaman ibu dalam merawat anak dengan leukemia. Jurnal Online Mahasiswa Program Studi Ilmu Keperawatan Universitas Riau, 1(1), 1-7.
  19. Masako, I. K. (2003). Motherhood. Dalam Ponzetti, J. J. (2nd ed.). International encyclopedia of marriage and family (hlm. 1146-1151). New York, NY: Macmillan Reference USA.
  20. Nayak, B., Cornelio, S., & George, A. (2016). Experiences of mothers on parenting children with leukemia. Indian Journal Of Palliative Care, 22(2), 168. doi: 10.4103/0973-1075.179608
  21. Nikfarid, L., Rassouli, M., Borimnejad, L., & Alavimajd, H. (2017). Experience of chronic sorrow in mothers of children with cancer: A phenomenological study. European Journal Of Oncology Nursing, 28, 98-106. doi: 10.1016/j.ejon.2017.02.003
  22. Nurhamida, Y. (2013). Power in marriage pada ibu bekerja dan ibu rumah tangga. Jurnal Psikogenesis, 1(2), 185-198. doi: 10.24854/jps.v1i2
  23. Penner, J., & McClement, S. (2008). Using phenomenology to examine the experiences of family of patients with advanced head and neck cancer: Reflections of a novice researcher. International Journal Of Qualitative Methods, 7(2), 92-101. doi: 10.1177/160940690800700206
  24. Pusat Data dan Informasi. (2015). Situasi penyakit kanker. Jakarta: Kementrian Kesehatan RI.
  25. Ramya, V., & Lakshmi, S. (2019). A methodical review of diagnosis and classification of leukemia using blood microscopic images. International Conference on Communication and Signal Processing. 258-262. doi: 10.1109/iccsp.2019.8698075
  26. Rokhaidah, & Herlina. (2018). Studi fenomenologi pengalaman orangtua dalam merawat anak dengan diagnosis kanker. Jurnal Kedokteran dan Kesehatan, 14(2), 31-38. doi:10.24853/jkk.14.2.31-38
  27. Sahler, O., Dolgin, M., Phipps, S., Fairclough, D., Askins, M., Katz, E., … Butler, R. W. (2013). Specificity of problem-solving skills training in mothers of children newly diagnosed with cancer: Results of a multisite randomized clinical trial. Journal Of Clinical Oncology, 31(10), 1329-1335. doi: 10.1200/jco.2011.39.1870
  28. Schwandt, T. A., Lincoln, Y. S., & Guba, E. G. (2007). Judging interpretations: But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. New Directions for Evaluation, 114, 11-25. doi: 10.1002/ev.223
  29. Sherief, L., Kamal, N., Abdalrahman, H., Youssef, D., Alhady, M., Ali, A., … Hashim, H. M. (2015). Psychological impact of chemotherapy for childhood acute lymphoblastic leukemia on patients and their parents. Medicine, 94(51), e2280. doi: 10.1097/md.0000000000002280
  30. Siu, A., Ma, Y., & Chui, F. (2016). Maternal mindfulness and child social behavior: The mediating role of the mother-child relationship. Mindfulness, 7(3), 577-583. doi: 10.1007/s12671016-0491-2
  31. Wahab, S. (2000). Ilmu kesehatan anak (15th ed.) Jakarta: Penerbit Buku Kedokteran EGC.
  32. Widayanti, C. G. (2012). The perceived role of god in health and illness: The experience of javanese mothers caring for a child with thalassemia. Jurnal Psikologi, 9(1), 65-72.