Exploration of the meaning making experience of mothers whose children suffered from acute lymphoblastic leukemia
Authors
-
Anggita Hotna Panjaitan
Faculty of Psychology, University of Indonesia, Indonesia
-
Winarini Wilman Mansoer
Faculty of Psychology, University of Indonesia, Indonesia
https://doi.org/10.24854/jpu140
Keywords:
caregiver, children with leukemia, mothers, mother's role, leukemia, phenomenologyAbstract
This study aims to explore the experience of mothers whose children suffered from Acute Lymphoblastic Leukemia (ALL). Mothers of child with chronic diseases, such as ALL, have to manage their roles as a caregiver for their sick child, while also managing domestic responsibilities. Using phenomenological approach, the interviews and observations were conducted to two mothers whose at least one of their children were diagnosed with LLA when they were 7 and 9 years old. Data collections were conducted in two sessions. Six themes were emerged by the participants:1) overcoming a turning point of their lives, 2) the learning process, 3) receiving support, 4) connecting with God and people in similar situation, 5) no mother is perfect, and 6) one thing at a time. The result of this study can inform wider community, as well as relevant professional workers, to better understand the psychological dynamics of the mothers or caregivers and to assist in designing mental health support programs for the caregivers of children with chronic diseases.
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References
Bally, J. M. G., Duggleby, W., Holtslander, L., Mpofu, C., Spurr, S., Thomas, R., & Wright, K. (2014). Keeping hope possible. Cancer Nursing, 37(5), 363-372. doi: 10.1097/ncc.0b013e3182a453aa
Behrman, R. E., Kliegman, R. M., Arvin, A. M. (2000). Ilmu kesehatan anak nelson (15th ed., Vol. 3). Jakarta: Penerbit Buku Kedokteran EGC.
Bozo, Ö., Anahar, S., Ate?, G., & Etel, E. (2009). Effects of illness representation, perceived quality of information provided by the health-care professional, and perceived social support on depressive symptoms of the caregivers of children with leukemia. Journal of Clinical Psychology In Medical Settings, 17(1), 23-30. doi: 10.1007/s10880-009-9177-4
Cicogna, E., Nascimento, L., & Lima, R. (2010). Children and adolescents with cancer: Experiences with chemotherapy. Revista Latino-Americana De Enfermagem, 18(5), 864-872. doi: 10.1590/s0104-11692010000500005
Coniglio, S., & Blackman, J. (1995). Developmental outcome of childhood leukemia. Topics In Early Childhood Special Education, 15(1), 19-31. doi: 10.1177/027112149501500104
Cooper, S., & Brown, P. (2015). Treatment of pediatric acute lymphoblastic leukemia. Pediatric Clinics of North America, 62(1), 61-73. doi: 10.1016/j.pcl.2014.09.006
Davis, A., Viera, A., & Mead, M. (2014). Leukemia: An overview for primary care. American Family Physician, 89(9), 731-738.
Fianza, P. I. (2006). Leukemia limfoblastik akut. Dalam Sudoyo, A. W., Setiyohadi, B., Alwi, I., Simadibrata, M., & Setiadi, S. (4th ed.). Buku ajar ilmu penyakit dalam (hlm. 1266-1275). Jakarta: Interna Publishing.
Florian, V., & Krulik, T. (1991). Loneliness and social support of mothers of chronically ill children. Social Science & Medicine, 32(11), 1291-1296. doi: 10.1016/0277-9536(91)90045-e
Guba, E. G. (1981). Criteria for assessing the trustworthiness of naturalistic inquiries. Educational Communication and Technology, 29(2), 75-91. doi: 10.1007/BF02766777
Himawan, K. K., Bambling, M., & Edirippulige, S. (2017). Modernization and singlehood in Indonesia: Psychological and social impacts. Kasetsart Journal of Social Sciences. 1-8. doi: 10.1016/j.kjss.2017.09.008
Hussain, A., Ahmad, N., Manzoor, R., & Hameed, M. (2015). Impact of modernization on gender roles: A study of advocates in muzaffar garh. International Letters Of Social and Humanistic Sciences, 52, 15-22. doi: 10.18052/www.scipress.com/ilshs.52.15
Katooa, N., Shahwan, L. J., Reece, & Jones, L. (2015). Characteristics of mothers with chronically ill children in jeddah, saudi arabia. International Journal of Nursing, 2(1), 59-73. doi: 10.15640/ijn.v2n1a7
Kurnianda, J. (2006). Leukemia mieloblastik akut. Dalam Sudoyo, A. W., Setiyohadi, B., Alwi, I., Simadibrata, M., & Setiadi, S. (4th ed.). Buku ajar ilmu penyakit dalam (pp. 706-709) Jakarta: Interna Publishing.
Lubkin, I. M., & Larsen, P. D. (2013). Chronic illness (9th ed.). Burlington, NJ: Jones & Bartlett Learning.
Macedo, E., Silva, L., Paiva, M., & Ramos, M. (2015). Burden and quality of life of mothers of children and adolescents with chronic illnesses: An integrative review. Revista Latino Americana De Enfermagem, 23(4), 769-777. doi: 10.1590/0104-1169.0196.2613
Major, D. (2003). Utilizing role theory to help employed parents cope with children's chronic illness. Health Education Research, 18(1), 45-57. doi: 10.1093/her/18.1.45
Maria, A., Indriati, G., & Rahmalia, S. (2014). Pengalaman ibu dalam merawat anak dengan leukemia. Jurnal Online Mahasiswa Program Studi Ilmu Keperawatan Universitas Riau, 1(1), 1-7.
Masako, I. K. (2003). Motherhood. Dalam Ponzetti, J. J. (2nd ed.). International encyclopedia of marriage and family (hlm. 1146-1151). New York, NY: Macmillan Reference USA.
Nayak, B., Cornelio, S., & George, A. (2016). Experiences of mothers on parenting children with leukemia. Indian Journal Of Palliative Care, 22(2), 168. doi: 10.4103/0973-1075.179608
Nikfarid, L., Rassouli, M., Borimnejad, L., & Alavimajd, H. (2017). Experience of chronic sorrow in mothers of children with cancer: A phenomenological study. European Journal Of Oncology Nursing, 28, 98-106. doi: 10.1016/j.ejon.2017.02.003
Nurhamida, Y. (2013). Power in marriage pada ibu bekerja dan ibu rumah tangga. Jurnal Psikogenesis, 1(2), 185-198. doi: 10.24854/jps.v1i2
Penner, J., & McClement, S. (2008). Using phenomenology to examine the experiences of family of patients with advanced head and neck cancer: Reflections of a novice researcher. International Journal Of Qualitative Methods, 7(2), 92-101. doi: 10.1177/160940690800700206
Pusat Data dan Informasi. (2015). Situasi penyakit kanker. Jakarta: Kementrian Kesehatan RI.
Ramya, V., & Lakshmi, S. (2019). A methodical review of diagnosis and classification of leukemia using blood microscopic images. International Conference on Communication and Signal Processing. 258-262. doi: 10.1109/iccsp.2019.8698075
Rokhaidah, & Herlina. (2018). Studi fenomenologi pengalaman orangtua dalam merawat anak dengan diagnosis kanker. Jurnal Kedokteran dan Kesehatan, 14(2), 31-38. doi:10.24853/jkk.14.2.31-38
Sahler, O., Dolgin, M., Phipps, S., Fairclough, D., Askins, M., Katz, E., … Butler, R. W. (2013). Specificity of problem-solving skills training in mothers of children newly diagnosed with cancer: Results of a multisite randomized clinical trial. Journal Of Clinical Oncology, 31(10), 1329-1335. doi: 10.1200/jco.2011.39.1870
Schwandt, T. A., Lincoln, Y. S., & Guba, E. G. (2007). Judging interpretations: But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. New Directions for Evaluation, 114, 11-25. doi: 10.1002/ev.223
Sherief, L., Kamal, N., Abdalrahman, H., Youssef, D., Alhady, M., Ali, A., … Hashim, H. M. (2015). Psychological impact of chemotherapy for childhood acute lymphoblastic leukemia on patients and their parents. Medicine, 94(51), e2280. doi: 10.1097/md.0000000000002280
Siu, A., Ma, Y., & Chui, F. (2016). Maternal mindfulness and child social behavior: The mediating role of the mother-child relationship. Mindfulness, 7(3), 577-583. doi: 10.1007/s12671016-0491-2
Wahab, S. (2000). Ilmu kesehatan anak (15th ed.) Jakarta: Penerbit Buku Kedokteran EGC.
Widayanti, C. G. (2012). The perceived role of god in health and illness: The experience of javanese mothers caring for a child with thalassemia. Jurnal Psikologi, 9(1), 65-72.
Behrman, R. E., Kliegman, R. M., Arvin, A. M. (2000). Ilmu kesehatan anak nelson (15th ed., Vol. 3). Jakarta: Penerbit Buku Kedokteran EGC.
Bozo, Ö., Anahar, S., Ate?, G., & Etel, E. (2009). Effects of illness representation, perceived quality of information provided by the health-care professional, and perceived social support on depressive symptoms of the caregivers of children with leukemia. Journal of Clinical Psychology In Medical Settings, 17(1), 23-30. doi: 10.1007/s10880-009-9177-4
Cicogna, E., Nascimento, L., & Lima, R. (2010). Children and adolescents with cancer: Experiences with chemotherapy. Revista Latino-Americana De Enfermagem, 18(5), 864-872. doi: 10.1590/s0104-11692010000500005
Coniglio, S., & Blackman, J. (1995). Developmental outcome of childhood leukemia. Topics In Early Childhood Special Education, 15(1), 19-31. doi: 10.1177/027112149501500104
Cooper, S., & Brown, P. (2015). Treatment of pediatric acute lymphoblastic leukemia. Pediatric Clinics of North America, 62(1), 61-73. doi: 10.1016/j.pcl.2014.09.006
Davis, A., Viera, A., & Mead, M. (2014). Leukemia: An overview for primary care. American Family Physician, 89(9), 731-738.
Fianza, P. I. (2006). Leukemia limfoblastik akut. Dalam Sudoyo, A. W., Setiyohadi, B., Alwi, I., Simadibrata, M., & Setiadi, S. (4th ed.). Buku ajar ilmu penyakit dalam (hlm. 1266-1275). Jakarta: Interna Publishing.
Florian, V., & Krulik, T. (1991). Loneliness and social support of mothers of chronically ill children. Social Science & Medicine, 32(11), 1291-1296. doi: 10.1016/0277-9536(91)90045-e
Guba, E. G. (1981). Criteria for assessing the trustworthiness of naturalistic inquiries. Educational Communication and Technology, 29(2), 75-91. doi: 10.1007/BF02766777
Himawan, K. K., Bambling, M., & Edirippulige, S. (2017). Modernization and singlehood in Indonesia: Psychological and social impacts. Kasetsart Journal of Social Sciences. 1-8. doi: 10.1016/j.kjss.2017.09.008
Hussain, A., Ahmad, N., Manzoor, R., & Hameed, M. (2015). Impact of modernization on gender roles: A study of advocates in muzaffar garh. International Letters Of Social and Humanistic Sciences, 52, 15-22. doi: 10.18052/www.scipress.com/ilshs.52.15
Katooa, N., Shahwan, L. J., Reece, & Jones, L. (2015). Characteristics of mothers with chronically ill children in jeddah, saudi arabia. International Journal of Nursing, 2(1), 59-73. doi: 10.15640/ijn.v2n1a7
Kurnianda, J. (2006). Leukemia mieloblastik akut. Dalam Sudoyo, A. W., Setiyohadi, B., Alwi, I., Simadibrata, M., & Setiadi, S. (4th ed.). Buku ajar ilmu penyakit dalam (pp. 706-709) Jakarta: Interna Publishing.
Lubkin, I. M., & Larsen, P. D. (2013). Chronic illness (9th ed.). Burlington, NJ: Jones & Bartlett Learning.
Macedo, E., Silva, L., Paiva, M., & Ramos, M. (2015). Burden and quality of life of mothers of children and adolescents with chronic illnesses: An integrative review. Revista Latino Americana De Enfermagem, 23(4), 769-777. doi: 10.1590/0104-1169.0196.2613
Major, D. (2003). Utilizing role theory to help employed parents cope with children's chronic illness. Health Education Research, 18(1), 45-57. doi: 10.1093/her/18.1.45
Maria, A., Indriati, G., & Rahmalia, S. (2014). Pengalaman ibu dalam merawat anak dengan leukemia. Jurnal Online Mahasiswa Program Studi Ilmu Keperawatan Universitas Riau, 1(1), 1-7.
Masako, I. K. (2003). Motherhood. Dalam Ponzetti, J. J. (2nd ed.). International encyclopedia of marriage and family (hlm. 1146-1151). New York, NY: Macmillan Reference USA.
Nayak, B., Cornelio, S., & George, A. (2016). Experiences of mothers on parenting children with leukemia. Indian Journal Of Palliative Care, 22(2), 168. doi: 10.4103/0973-1075.179608
Nikfarid, L., Rassouli, M., Borimnejad, L., & Alavimajd, H. (2017). Experience of chronic sorrow in mothers of children with cancer: A phenomenological study. European Journal Of Oncology Nursing, 28, 98-106. doi: 10.1016/j.ejon.2017.02.003
Nurhamida, Y. (2013). Power in marriage pada ibu bekerja dan ibu rumah tangga. Jurnal Psikogenesis, 1(2), 185-198. doi: 10.24854/jps.v1i2
Penner, J., & McClement, S. (2008). Using phenomenology to examine the experiences of family of patients with advanced head and neck cancer: Reflections of a novice researcher. International Journal Of Qualitative Methods, 7(2), 92-101. doi: 10.1177/160940690800700206
Pusat Data dan Informasi. (2015). Situasi penyakit kanker. Jakarta: Kementrian Kesehatan RI.
Ramya, V., & Lakshmi, S. (2019). A methodical review of diagnosis and classification of leukemia using blood microscopic images. International Conference on Communication and Signal Processing. 258-262. doi: 10.1109/iccsp.2019.8698075
Rokhaidah, & Herlina. (2018). Studi fenomenologi pengalaman orangtua dalam merawat anak dengan diagnosis kanker. Jurnal Kedokteran dan Kesehatan, 14(2), 31-38. doi:10.24853/jkk.14.2.31-38
Sahler, O., Dolgin, M., Phipps, S., Fairclough, D., Askins, M., Katz, E., … Butler, R. W. (2013). Specificity of problem-solving skills training in mothers of children newly diagnosed with cancer: Results of a multisite randomized clinical trial. Journal Of Clinical Oncology, 31(10), 1329-1335. doi: 10.1200/jco.2011.39.1870
Schwandt, T. A., Lincoln, Y. S., & Guba, E. G. (2007). Judging interpretations: But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. New Directions for Evaluation, 114, 11-25. doi: 10.1002/ev.223
Sherief, L., Kamal, N., Abdalrahman, H., Youssef, D., Alhady, M., Ali, A., … Hashim, H. M. (2015). Psychological impact of chemotherapy for childhood acute lymphoblastic leukemia on patients and their parents. Medicine, 94(51), e2280. doi: 10.1097/md.0000000000002280
Siu, A., Ma, Y., & Chui, F. (2016). Maternal mindfulness and child social behavior: The mediating role of the mother-child relationship. Mindfulness, 7(3), 577-583. doi: 10.1007/s12671016-0491-2
Wahab, S. (2000). Ilmu kesehatan anak (15th ed.) Jakarta: Penerbit Buku Kedokteran EGC.
Widayanti, C. G. (2012). The perceived role of god in health and illness: The experience of javanese mothers caring for a child with thalassemia. Jurnal Psikologi, 9(1), 65-72.
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Published
2020-08-10
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Panjaitan, A. H., & Mansoer, W. W. (2020). Exploration of the meaning making experience of mothers whose children suffered from acute lymphoblastic leukemia. Jurnal Psikologi Ulayat, 7(2), 244–263. https://doi.org/10.24854/jpu140
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