Exploration of the meaning making experience of mothers whose children suffered from acute lymphoblastic leukemia
Keywords:caregiver, children with leukemia, mothers, mother's role, leukemia, phenomenology
This study aims to explore the experience of mothers whose children suffered from Acute Lymphoblastic Leukemia (ALL). Mothers of child with chronic diseases, such as ALL, have to manage their roles as a caregiver for their sick child, while also managing domestic responsibilities. Using phenomenological approach, the interviews and observations were conducted to two mothers whose at least one of their children were diagnosed with LLA when they were 7 and 9 years old. Data collections were conducted in two sessions. Six themes were emerged by the participants:1) overcoming a turning point of their lives, 2) the learning process, 3) receiving support, 4) connecting with God and people in similar situation, 5) no mother is perfect, and 6) one thing at a time. The result of this study can inform wider community, as well as relevant professional workers, to better understand the psychological dynamics of the mothers or caregivers and to assist in designing mental health support programs for the caregivers of children with chronic diseases.
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